Howdy all. Thanks so much for your thoughts and prayers again today and for your faithful support of Grace and I. Today was a great day in terms of information with some really good news and some dissappointing news too. Since I can't please all I'll start with the dissappointing news and then get better :)
They did the scope #5 this morning with Grace's mom and I waiting outside the room. Blister STILL there...yep. So they couldn't go down far to check deeper in her lungs once again. After being a part of the team discussion with about 15 different physicians in the room we were able to find out the long road ahead that we have, but also got to see the care of each person and that truly she is in an incredible place there at Crozer. They said that it's 3 days of recovery to every 1 day on the ventilator. Monday is now the new day we are all hoping for and they will be taking Gracie into the OR (this is the plan for now) to have her in a controlled environment so they can take out the current tube and get a good look down there. If all looks good (which they continue to expect) they can keep the tube out and wake her up a that point. If there is still swelling/blisters they will probably just put a smaller tube back into her so it's not as irritating of a tube. So Monday is the new day we are all looking to get toward and Gracie will need all of you praying to carry her there calmly and without difficulty.
Good news of the day, they checked the surgery sites and rebandaged her and she looked GREAT. They had her sit up today and they will start therapy here daily even while she is sedated. They said she will have 100% mobility they expect here in the future. So that is great news and the donor sites look like they are healing well too. They are itchy for her but they should heal well. Also because of the burn location on her feet, they don't expect outpatient therapy needed later.
As I mentioned before 3 to 1...so to do the math, if all is best and she can get extubated on Monday, that is 15 days, meaning 45 days to recover before being able to do her desk job again. I'm sure there is more we will find out but this will change a lot in the coming months. Thanks for all your support and prayers and willingness to cook, visit, and more. I'll keep those posted I should in the weeks to come so that Gracie is served best without overwhelming her when we get out of this.
Thank you all for your care, keep praying! Please also pray for her dad who is traveling home as I type and should arrive in Philly tomorrow night in time to see her Friday at the first visiting hours.
Hoping the next 120 hrs dissappear for my Gracie.
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Lamar,
ReplyDeleteThank you for taking the time to keep everyone updated. We have been praying for Grace and the family every day. I showed my 4 year old daughter (Taylor) this site on Sunday and she has asked me to read her the updates and comments every day since. Even though she has never meet Grace, she has seen pictures and been told she looks like Gracie did when she was a child. Taylor has been very moved by your words and Grace's courage (we all have). Please send our love to Gracie and let her know we are all praying for her.
Love Greg, Melissa and Taylor.
Lamar,
ReplyDeleteThanks so much for all of your posts. Wanted to let you know that William and I have been following them and that we have been praying for you both. I do not understand how hard it is to watch Grace go through all of this, but keep looking up. We are eagerly waiting for the day she is extubated and able to communicate with you easier.
Love, William and Kate Hynes
We continue to pray for you both for the days ahead. Each one is precious and has a purpose & we thank God for your love & trust in Him each step. So many people have some form of illness right now of which a "sore throat" can be a symptom - can't imagine how sore grace's throat is so it's a small reminder to keep her ever before the Lord. We esp continue to pray for restful nights' sleep & look forward to celebrating with you the day the tube is gone!
ReplyDeleteDan & Cathy F.
Grace and Lamar,
ReplyDeleteContinuing to keep you in our prayers. May you continue to feel Gods love for you during this time. It will be so nice to have your father there on Friday.
The Power Of Love
READ: Zephaniah 3:14-20
The Lord your God in your midst, the Mighty One, will save; He will rejoice over you with gladness, He will quiet you with His love. —Zephaniah 3:17 The documentary film Young@Heart gives a rollicking look at a senior chorus of 24 singers whose average age is 80. Filled with humor and poignant moments, the film includes this remarkable singing group’s deeply moving performance at a New England prison. When the concert concludes, the singers walk into the audience, greeting the surprised prisoners with handshakes and hugs.
The inmates’ unexpected amazement at this personal touch reminds me of the book of Zephaniah in which the prophet brings a powerful message of God’s presence and love to His people during a dark time: “The Lord your God in your midst, the Mighty One, will save; He will rejoice over you with gladness, He will quiet you with His love, He will rejoice over you with singing” (3:17).
According to Bible teacher Henrietta Mears, Zephaniah “begins with sorrow but ends with singing. The first of the book is full of sadness and gloom, but the last contains one of the sweetest songs of love in the Old Testament.”
God’s love for us is always astonishing, especially when it touches us at a low ebb of life. During our darkest times, the Lord comes to us with His joy, His love, and His song. — David C. McCasland
If your heart is filled with sadness,
Or you struggle with despair,
Turn to God, who’ll bring you gladness
When you sense His love and care. —Sper
In God’s garden of love, you are His forget-me-not
You've been really great in keeping us updated! We'll pray to these ends!
ReplyDeleteBill and Deja
We are praying and praying! Thank you for keeping us posted so we know how to lift you up : )
ReplyDeleteCandace and Jonathan